Parent Support Groups for Children with
Disabilities or Special Needs
This is an annotated list of support groups and listservs for parents
of children wih disabilities or special needs. Read descriptions and join
the special needs parent support group that best meets your child's needs.
Special needs parent support groups and discussion listservs are excellent
resources for parents of children with a variety of disabilites or special
needs. In addition to these general special needs parenting groups, you
may also wish to review related disability topic groups (such as sensory
integration) in our Directory of Children's
Disability Support Groups.
Our
Kids
An excellent, well-established support group for parents of children with
physical and/or mental disabilities and delays.
To Join: In the body of your email, send the message, SUBSCRIBE OUR-KIDS
Your Real Name to listserv@listserv.syr.edu
or join online.
Listowner: Randy Ryan
Special
Child Exchange Equipment Board
Discussion group and equipment exchange group to buy, sell, trade or donate
equipment for special needs children. Helps families locate necessary
medical supplies and/or durable medical equipment that is not being utilized.
To Join, visit http://groups.yahoo.com/group/SCE-Equipment/
Birth
to Three Support
Support for parents and professionals in Birth to Three Programs or Early
Intervention or ECI programs.
To Join: Send a blank message to BirthtoThreeSupport-subscribe@yahoogroups.com
or join online.
Listowner: Bridget A. Bailey
Child Dev Delays (Children with Developmental
Delays)
Mailing list for parents of a child (or children) with developmental delays
(speech and language, motor, cognitive, sensory, emotional and social,
etc.).
To Join: Send a blank message to childdevdelays-subscribe@yahoogroups.com
or join online.
Parents of Severely Disabled Kids
A support group for parents and families of children who are Severely/Profoundly
disabled. Parents can find support for different disabilities including
Cerebral Palsy Developmental Delays, Failure to Thrive, Feeding Tubes,
Mentally Impaired, special needs, Spina Bifida, Seizures, Brain Injured,
Scoliosis, CMV, Microcephaly, and many others as well.
To Join: Send a blank message to ParentsofSeverelyDisabledKids-subscribe@yahoogroups.com
or join online.
Listowners: Judy, Lynne, and Christine
Rare Dis (Rare Disorders)
Rare Disorders mailing list for resources on any rare disorder and/or
to network with other people with the same disorder. Not very active,
but you can read the archives and if you post a question you will likely
receive an answer.
To Join: Send the message, SUBSCRIBE RARE-DIS Your Name to LISTSERV@LISTSERV.ICORS.ORG
or join online.
Listowner: Bill McGarry
CP-SK : Christian
Parents Special Kids
A support group for Christian Parents parenting children with a wide variety
of special needs.
To Join: Send a blank message to CP-SK-subscribe@yahoogroups.com
or join online.
Listowner: Lisa Little
Our Special Needs Children
Support group for parents of Special Needs Children, who have any of the
following: Hypotonia, Speech Language Disorders, Apraxia, Dyspraxia, Developmental
Delays, Sensory Integration Dysfunction, APD, Autistic Tendencies, PDD.
I want this to be a place to share information, such as new treatments,
supplements, diets, therapies, doctor recommendations, or just to ask
advice or get support.
To Join: Send an email to OurSpecialNeedsChildren-subscribe@yahoogroups.comn
or join online.
Special Child Exchange
A place to trade, sell, or donate special needs equipment and related
baby and children's supplies.
To Join: Send an email to SpecialChildExchange-subscribe@yahoogroups.comn
or join online.
Listowner: Steve Gay
Go to the Directory of Children's Disability
Support Groups
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